Messages of Support for World Hospice and Palliative Care Day 2009
Target Ovarian Cancer supports World Hospice and Palliative Care Day 2009
Target Ovarian Cancer a UK based charity which represents women and professionals living and working with ovarian cancer would like to send our unconditional support to World Hospice and Palliative Care Day 2009 “Discovering your voice”. We know through the experiences of the women and families we work with that the hospice and palliative care specialists make a vital contribution to quality of life.
The Target Ovarian Cancer Pathfinder Study reveals that sadly in the UK access to palliative care services is still unpredictable and integration between palliative care teams and mainstream medical teams is very mixed. This is not an acceptable situation for women and their families. We hope the voices of women that contributed to our study can be heard across the world as we recognise that hospice and palliative care experts are essential to enable women with ovarian cancer to both live and die with dignity.
Messages of Support from previous World Hospice and Palliative Care Days
Archbishop Tutu said he supported World Hospice and Palliative Dare day with Voices for Hospices
I am delighted to give my backing to the first World Hospice and Palliative Care Day with Voices for Hospices, which will take place on 8 October 2005. This day is an important global event, a unified day of action to celebrate and support hospice and palliative care around the world. Every year, millions of people around the world living with a terminal illness suffer unnecessary pain and distress, either unaware of or unable to access the care they need. Good quality hospice and palliative care which aims to meet the needs of the whole person can and does affect provide an answer. This is an issue that affects literally everybody on this planet - we would all like our lives - and the lives of those we love to end peacefully and comfortably. The organisers expect that support for World Hospice and Palliative Care Day will result in it becoming an annual calendar event. I would urge you to get involved and pledge your support now to World Hospice and Palliative Care Day on 8 October 2005.
World Health Organization message supporting World Hospice and Palliative Care Day
Based on WHO's definition, palliative care is not only end of life care but starts from the time a life-threatening illness is diagnosed and should be offered alongside treatment. It becomes invaluable for patients and their families who are in need of physical, psychosocial, and spiritual support so they are able to cope and manage the disease. Every human being is entitled to adequate care and no one should suffer unnecessarily. Unfortunately too many people still suffer because drugs, particularly opioids to relieve their pain are unavailable or because they have no access to adequate care.
WHO recommends that all countries develop comprehensive palliative care policies and programmes with a public health approach that includes symptom management, psychosocial and spiritual support for patients and their caregivers, that is integrated into the existing health system. WHO also recognizes that palliative care programmes must be tailored to each country's resources and existing health care infrastructures, since there are wide variations in cultural attitudes towards palliative care and availability of resources. The provision of home-based care by trained and adequately supervised family or community caregivers, particularly in poor resource settings, can be the best way to provide palliative care for the majority of patients who require it.
John Bowis, Member of the European Parliament and former UK Health Minister said
It is time for palliative care to take its place on the agenda for European health policy - both across the EU and in policies for Developing Countries and for the new neighbours in Eastern Europe. In the European Parliament, we have already raised the profile and the Commission door is open to ideas.
Gareth R. Thomas MP - Minister leading on HIV and AIDS Policy Work, Department for International Development, UK
I am delighted to give my backing to the first World Hospice and Palliative Care Day taking place on 8 October 2005. This day is an important way to raise awareness and understanding of the value of hospice and palliative care as well as a chance to raise vital funds for services worldwide.
I have seen first hand the importance of palliative care in tackling AIDS in the developing world. In May I visited South Africa, and I was taken to a project in a township run by the Anglican Church. I met some remarkable women who are supporting the township to deal with the impact of AIDS. They support orphans and families who've lost loved ones and provide nursing services and care for the dying. They took me to one home, a corrugated iron hut just off the main road to meet a woman who had acquired HIV from her husband who had already died. She was so sick it took her a huge effort just to sit upright in bed. It was clear that, like many women, she had to cope with her own illness and grief while also shouldering the huge challenge of caring for loved ones with terribly limited resources. This woman relied heavily on the support of the other women in the community who visited her and provided care and support throughout the illness.
With the devastating impact of disease in many countries including HIV and AIDS, there is an urgent need for low cost, high quality palliative care that is flexible, appropriate and accessible to all. This is an issue for all societies, all governments and all people. I would urge you to get involved and pledge your support now to World Hospice and Palliative Care Day on 8 October 2005.
Balfour M. Mount OC OQ MD FRCSC Eric M. Flanders Professor of Palliative Medicine, McGill University
Over the past four decades the seed of compassion sewn by Dr. Cicely Saunders in Southeast London with the opening of St. Christopher's Hospice has borne rich fruit in programs around the world. Lessons learned in easing end-of-life suffering due to malignant and progressive neurological diseases have been applied in an increasing array of acute and chronic illness settings. The result has been a deeper understanding of the determinants of suffering and the potential of whole person care. So much has been accomplished! So much remains to be done! On October 8th, as we celebrate World Hospice and Palliative Care Day, let us open our hearts to the cries of those whose ongoing suffering we now have the knowledge and resources to address and find the personal and political resolve to change all of that.
The International Union Against Cancer (UICC)
Which represents close to 270 member organisations including research and treatment centers, voluntary cancer leagues and patient associations in 90 countries are pleased to support this worldwide campaign. Collaboration and partnerships are important to advance this important cause and to help develop standards and infrastractures where these are lacking. UICC is committed to furthering palliative care and patient information and support services and to promoting these within the context of national cancer control strategic efforts worldwide.
We join this campaign as an important means of raising public awareness to the benefit of cancer patients and their families worldwide.
The British Pain Society would like to voice its support for the World Hospice and Palliative Care Day on 8 October 2005.
The British Pain Society is the representative body for all professionals involved in the management and understanding of pain in the United Kingdom. The Society aims to achieve the highest possible standards in the management of pain through education, training and research in all fields of pain and by facilitating the exchange of information and experience. Many of its members also work in palliative care and advise about the management of severe pain in terminal illness, whether the pain is from cancer or from non-malignant disease. The Society recognises the suffering of people around the world where the medicinal use of morphine and other opiate analgesics is often woefully inadequate. It also strongly supports the special needs of children and the elderly in respect of pain management.
The World Hospice and Palliative Care Day on 8 October will highlight the need for good pain management to extend beyond the developed world and will emphasise the teaching that is necessary for all professionals, the recognition of pain and the promotion of the concepts of pain relief so simply and aptly explained by the late Dame Cicely Saunders.
Dr Joan Hester President Elect, British Pain Society
Pat Cox – the former President of the European Parliament
“World Hospice Day offers an opportunity to highlight issues of importance to the development of hospice care, especially in poorer regions. We need to create a context in which dying, death and bereavement can be developed as a matter of public concern and where the concept of ‘a good death’ is a valid aspect of social and public policy.”
Royal College of Nursing statement in support of World Hospice & Palliative Care Day
Royal College of Nursing President Sylvia Denton said: "The Royal College of Nursing is delighted to support World Hospice and Palliative Care Day. Nurses are the key workers and leaders in the delivery and development of palliative care services. Effective,compassionate palliative care is a fundamental of nursing and the RCN, whose palliative nursing forum has more than 8000 members, is pleased to contribute to this work."
Kim and Aggie, How Clean is Your House? UK
"It is a shocking fact that every year, millions of people around the world living with terminal illnesses, experience unnecessary pain and distress.
Hospice care helps people live as comfortably as possible with their illness and supports their families and friends in caring for them.
We believe that if a job?s worth doing, it?s worth doing well - surely this is one of the most important jobs there is. We wish the first World Hospice and Palliative Care Day the greatest success and hope it will encourage governments and individuals to do more to make hospice care a priority."