11 October 2008
Hospice and palliative care: a human right

Full List of Poems

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Butterfly People

Author: Audrey Lee

Butterfly people who flit in and out,
Giving me hope and courage to go about,
I hear stories funny and sad,
Some are good, some are bad,
Making me feel I'm not the only one,
Some people stay a while, some are soon gone,
Butterfly people leave impressions each day,
I wouldn't have it any other way,
Butterfly people are everywhere,
You can see them here, you can see them there,
Everybody is a Butterfly at heart,
In this life we all play our part.


Life

Author: Audrey Lee

You come from the cradle, to the grave,
And as you grow older, you grab at memories to save,
You will look back, with a tear in your eye,
At all the wasted time, you let slip by,
All the things, you should have done,
Not realising every minute, was a precious one,
Different faces cloud your mind, every day,
And wonder, was there any other way?
To live your life, the way you have done,
Now realising, three-quarters of it's gone,
You close your eyes, for just a while,
And start to dream, with a smile ....


Geese

Author: Mary Winton

Trimar

The geese flew overhead today, to go far, far away

 I wish I could go with them to soar the skies and see the world, no cares or worries, just freedom but

no not now, I’m marked you see I’m clinic bound forever.

 

The treatments over, the getting better starts,

I wish I was rid of the heaviness deep in my heart

“Why me?” I asked the nurse at clinic, she could not answer me

All gone are the strappy tops, to wear down by the sea.

 

The scar is high, this miserable mark, so cover it up and hide it

Pretend that it’s not happened, try to live with it, be natural

The prosthesis is quite heavy, awkward and uncomfortable

But you can get lightweight ones and stick on ones, so that’s alright then.

 

Will it come back, this Cancer in my breast?

I don’t know – no one does.

You would think I was all cried out, but the tears never seem to end

Sometimes all I want to do is rage and scream and shout

I can see no light at the end of this tunnel

Although there must be, I’ll just have to wait and see.


Goodbye

Author: Mary Winton

Trimar

No sweets for you, the doctor said, your sugar level’s high,

So now the time has come, for us to say goodbye

Goodbye my darling chocolate, the best friend I ever had,

Always there to comfort me whenever things were bad.

 

Goodbye boiled sweets and toffee too, alas this is the end,

But don’t forget you always were a very special friend.

Goodbye to all my biscuits it’s rich tea from here on in,

I’ll have to throw away your home, that special biccie tin.

 

Goodbye to cakes of various kinds, no more can you be eaten,

What shall I do? this is the end, I think I’m truly beaten.

More fruit and veg the doctor said, it’s good for you and healthy,

Oh bog off twat, I don’t want that, I’ll chuck myself off the belfry.

 

Now veg is green and so are grass and hedges, trees and bushes

You don’t eat them, no way, no how, so slow down from your rushes,

Apples, pears, cherries, grapes, bananas and whatever

A right old feast for some poor sod, but not me, not now, never.

 

Just give me back my good old friends and rewind all those years

I’m sure that me and chocolate can cope with all the fears

And biccies too and cakes galore and watch the weight pile on

I’d better not on second thoughts, those days have really gone.


No One

Author: Mary Winton

Trimar

No one said it was going to be easy

No one said it was going to be fair

No one said it was going to be breezy

But they did say I would lose my hair

 

No one said I would ever be pretty

No one said I would ever be smart

No one said I would ever be witty

But they do say I have a good heart

 

No one said that there wouldn’t be crying

No one said that there wouldn’t be fears

No one said that there wouldn’t be trying

But they did say I’d be around for years

 

No one said that the doctor is right

No one said that the doctor is wrong

No one said that the doctor is trite

But they do say you have to be strong

 

No one knows what tomorrow will show

No one knows what next week will unfold

No one knows what will happen in an hour from now

But they did say you now have control


Cake

Author: Mary Winton

Trimar

I’m gonna have that cake

Him sitting there on that plate

Yea, him with all his mates

Smiling, smirking, looking great

 

He’s sat there dressed to the nines

With sprinkles and decorations so fine

Keeps looking at me and winking

Little does he know what I’m thinking

 

He’s got his mates around him

All sat there on their plates

Some with sprinkles, some with cream I hope this is not a dream

 

He’s got a light sponge body

And looking mighty fine

Just a few moments longer

And that cake is gonna be mine

 

I’ll take him out to my car

Where we can be alone

Just him and me under the stars

I’ll even switch off me phone

 

I know he’ll make me poorly

I know he’ll make me ill

He’ll throw my sugar levels out the window

He will, I know he will

 

Don’t want your rotten cake now

Don’t care if it’s decorated fine

Not keen on hospital food am I

Fruit salad, oh lovely, that’s mine


Ah Bless

Author: Mary Winton

Trimar Hospice

She’s not been well

Ah bless

 

Proper poorly she’s been

Ah bless

 

Had Breast Cancer, she did

Ah bless

 

And chemotherapy too

Ah bless

 

It took six months to sort

Ah bless

 

She had some good support

Ah bless

 

Her family and friends did help

Ah bless

 

She’s all better now

Ah bless

 

Got a new job now as well

Ah bless

 

Has got the all clear

Ah bless

 

Time to move on

Ah bless


Where have you gone?

Author: Marilyn Prowse

St Luke's, Plymouth

Where have you gone to? You're not here any more.

Did you know you were leaving

As you walked out the door?


Did you bother with packing your toothbrush and comb?

Did you know you were leaving

And not coming home?


There's an empty space, an aching hollow.

Did you know you were leaving

And no-one to follow?


Did you know that we loved you? You knew that we might.

Did you know you were leaving

Did you put up a fight?


We'll get better in time. We'll heal, in a while.

Did you know you were leaving

And taking your smile?


We'll think of you often, with a tear and a sigh.

We didn't know you were leaving.

We didn't say goodbye.






Kiss

Author: Audrey Lee

St Barnabas' Hospice, Worthing,

At a really bad phase in time

Consent to be my lifeline

So come and kiss my tears away

And wake beside me to a brand new day


My Sis.

Author: Bethany Welch

st helena hospice

I remember when you'd collect me from school

Our trips to Makky D's were always cool

I remember going swimming with you

Down the green flume but not the blue.

 

I remember the way you'd play fluffy bunnies

So many marshmallow, that was always funny

I remember your laugh and the sparkle in your eyes

I remember at Christmas when we made mince pies.

 

I remember when you dressed me just like

Scary Spice with a hairbrush as a mike

I still have the picture of me on that day

With way too much make-up and hair getting in my way.

 

I remember the games that we would play

I remember that smile every day

I remember you looking out for me

Your little sis, that will always be.

 

I imagine now that we could chat

About boys or make-up, stuff like that

I can see us in your creative room

Crying and laughing like sisters do.

 

I miss a lot of things about you

I miss our times together too

I miss having you to hug and kiss

But most of all I miss my sis.

 

by Bethany Welch


Around the Bend

Author: Nancy  Aumont

Sweet Charity Hospice Fund

Sometimes we walk along a path

Beneath a cloudy sky

There´s nothing to the right or left

To lift our spirits high

Then, at last, we turn a corner,

And there bursts into our view

A scene of light and beauty,

And the world seems fresh and new.

So always hold this little thought

That cares are bound to end

And there´s a brighter day ahead

Just waiting round the bend.

 


Lonely but not alone !

Author: Barbara van der Kleij

Sweet Charity Hospice Fund

I am Lonely

You are Lonely

Together we are Lonely

 

I am Nice

You are nice

Together we are

Nice and Lonely

 

I am pretty

you are pretty

together we are pretty lonely

 

 Lets meet half way

so we are lonely

but not ALONE!

Dedicated to Kate Woodland my workshop mate !

 


War

Author: Audrey Lee

St Barnabas, Worthing, Sussex

Nations at war, at what cost?

Governments counting pound signs, not lives lost!!

Scientists probing to cause further unimaginable destruction,

Whilst goverments talk of nuclear reduction.

The minds of these people simply amaze me,

What kind of humans could they be?

They expect us to understand why,

They have the right to let people live or die.


My favourite place

Author: Chloe Shearman

St Helena Hospice, Colchester

 

Down at the enormous pond at the Hospice.

It is so beautiful with the lily pads and the fish.

I love the little moorhens.

And the steps leading to some little paths.

And there is some bamboo on the other side of the pond.

With a kitten that lives in one of the houses around.

And all the birds singing in the trees.

And I can just go there and be on my own and sing like the birds.

And the buzzing of the bumble bee.

I could just lie there on the grass and fall asleep with the kitten in my arms.

 


The Constant Enemy

Author: Dorethy Trewartha

Trimar

Grandmother died from it

aged 60.

Left it too long so

a massive operation

and 2 years of suffering.

 

Mother was afraid of it

never spoke of it

except in whispers.

Cancer was like that,

almost shameful.

It missed her though!

 

I found a lump and knew.

How did I feel?

Impatient, angry!

Too much so to feel afraid.

How dare a lump disrupt my life.

I had my work, a job to do,

no time to be ill

Lumpectomy, radiotherapy.

Then back to work, forget it.

 

Dying never came into it.

 

Seven years on some left-over bit

went walkabout

and invaded my lung.

‘Incurable’ they said,

but ‘controllable.’

 

So it proved but

the warning flag was out.

Work still gripped

but life beckoned.

 

Life in Dorset,

long planned, now realised.

A rich retirement

of new experience

and freedoms once denied.

 

In ‘97

another lump demolished,

another medication

which worked.

Death came closer

but stood to one side.


An Innocent Kid

Author: Nkosnathi Ndlazi

Ingwavuma Orphan Care

Who has to die?
Why am I dying?
How many years should I have?
To qualify for death?
Whom should I blame?
I am 3 years old, but I am dying
When and how can I reach my destination?

I have never done anything wrong before God,
Before my parents, before community and
Even before myself but I am dying, why?
Before I was born, God was having certain
Goal and my parents were expecting a brighter
Future from me but all that has vanished.

Oh! I wish I was not born rather than
Having a few moments in life yet I guess
People are having nice times on earth but
I am very disheartened to say that I have not
Got that chance to show my character in
The community, who knows? maybe
I was to be a president for our nation
But all that has vanished.

If wishes were horses, beggars may ride,
I wish I stayed longer than I was supposed to
On earth, but I have failed to defeat devil in time


The Traveller

Author: Collette Waller

Greenwich & Bexley Cottage Hospice

I'd like to say

I've been here and done this

Been there and done that

The fact is I ain't been nowhere

Recently


Envy

Author: Collette Waller

Greenwich & Bexley Cottage Hospice

I like the way I am, but

Today I looked and saw two people running

That once was me, I thought

Today I saw someone walking their dog

I don't have a dog but I wanted to be walking one

Today I saw an old friend wheeling a buggy

I wished it were me

Last time I saw my girlfriends it was nothing but

The price of Pampers Pureed baby food

Change the subject, I thought

I've never been jealous in my life

But sadly, I am now

I have become impatient

I have become dependent


Feelings

Author: Collette Waller

Greenwich & Bexley Cottage Hospice

The other day, well

Three in the morning it was

I said to my Dad

Who was awake

I feel so depressed

He paused, then said

Don't use that word

You're not

I said, alright then I'm frustrated


I Miss

Author: Kay Bates

Sue Ryder Care, Leckhampton Court, Cheltenham

I miss…… 

our gentle, soft, silken and silver-furred Jibby,

that character Bootsie for comfort and comp’ny,

walks on high mountains, through woods and on beaches,

that warm “fuzzy buzz” that you gets when you teaches!

 It’s fun…… 

meeting for coffee and shopping with friends,

having a lie-in, some days without end!

e-mailing “funnies” and surfing for hours

searching for bargains – not more books or flowers??

 I have…… 

life support from a team I can’t cope without,

plans for the future to get out ‘n’ about.

pride in achievements both past and to come,

hopes for more days with bright blue sky and sun.

 I will…… 

love my partner, my soul-mate, right to the end,

be proud of his strength which seems never to bend.

enjoy his humour, his wit and his cooking,

and wish him the best when for new love he’s looking.

 I need…… 

people around me who treat me as normal,

who laugh, who joke and try not to be formal;

someone to talk to with no strings attached

to help sort out my feelings without any catch.

 I’m scared…… 

not of death itself, but the process of dying;

of too much pain and sorrow, lots and lots of crying;

of being all alone when the time comes to die –

but I’ve never been good at saying goodbye.

 I want…… 

someone please to tell me it’s all a bad dream,

and things aren’t really getting as bad as they seem;

to know what none can tell me: the where and how - not when

I’ll take that final breath and never live again.

 I feel…… 

desperate to do what I can while I can,

and spend as much time as there is with my man;

so sad to leave him with so much not done

but eternally grateful he’s been my sun.


The End

Author: Kay Bates

Sue Ryder Care, Leckhampton Court, Cheltenham

Our cat had a tumour,

No rumour.

Just like mine!

With love we helped him go.

Miss him so -

each little sign!

 

I want that peaceful end,

please my friend,

when it's my time.

Be glad my suff'ring's ended,

Not ex-ten-ded

like this rhyme!


Grey shades to Gold

Author: Kay Bates

Sue Ryder Care, Leckhampton Court, Cheltenham

I found myself in a harsh, helpless, hopeless world;

turned in on myself like a leaf tightly curled;

emotions in turmoil,

plans for the future suddenly foiled.

In a barren, bleak landscape,

all greys without shape,

I sought only escape,

feeling body and mind no longer whole

and so unprepared for this unwelcome role.

Despondent and despairing,

depressed and depressing,

I feared coming months as painful and fleeting.

Lonely and scared, to Sue Ryder I came,

knowing no more than the name.

A new era was born

with all the joy of a bright new dawn;

people to talk to who help and support

and a new inner happiness I could never have bought.

I turned to the golden sunlight of positive life.

Abandoning fears which cut like a knife

I entered a garden bright with a fusion

of colour and clarity,

without weeds of confusion:

flowering friendships,

giving and growing

with budding well-being

and new talents flourishing,

soft blossoms of comfort soothe my soul fraught.

Holistic care is accepted with pleasure,

provided by those who give without measure.

Sharing caring company,

the strength of community

and the power of continuity,

with empathy, therapy, friendship and fun

my day at Sue Ryder is all too soon done.

But how do I feel?

Looking forward to next week with vigour and zeal!


Simpson's Gap, Northern Australia

Author: Pat 

Sue Ryder Care, Leckhampton Court, Cheltenham

Today a butterfly drank from my hand.

A coach stop at Simpson’s Gap

In the dry-tongued brittle heat of the Red Heart.

“Go and see the rock wallabies” said our guide,

“but keep together, go quietly and don’t forget to drink.”

Whooping and shouting they piled out…….

“Quick, quick, let’s see how far we can go.”

“Run, run. I can go further than you.”

Left behind, I turned from the track and sat on a log

And as the torn silence settled down again

I heard the tick-tock sound of the bush.

Then, remembering, drank from my water bottle,

A few drops falling sparkling on my hand.

At once, down came a bright beauty.

Landed on my hand – I felt the flicker of its feet.

It drank, quivering, until the drops were gone.

Then it fluttered the fan of its wings

And then was away, that bright beauty.

I felt the air softly stir on my finger

As the bush settled around me again.

I did not see the rock wallabies

But a butterfly drank from my hand today.


The Cuckoo

Author: Pat 

Sue Ryder Care, Leckhampton Court, Cheltenham

I built my nest with pride and care,

that love might find a dwelling there.

Then came that cuckoo, cancer,

and in it laid her egg

which I, unwitting,

nourished until it hatched

and killed my fledgling hopes and plans.


Winter

Author: Pat 

Sye Ryder Care, Leckhampton Court, Cheltenham

“We’re in the dark of the year.” said the Mother.

“The men are on short time.” she said.

Drifting in the smoke about her

She saw the grey grimness of the months ahead.

The cold, the dark, the pain of chilblains.

The shortage of food.The struggle to live

Until the earth turned

And the dark of the year had gone.

Uncomprehending crouched the children

Eyes flickering with the flames of the fire.

“We’re in the dark of the year.” said the children.

“Christmas will soon be here.” they said.

Like the sparks of the fire before them,

They saw the treats of the months ahead.

The snow and the sliding, cards at Christmas.

Roasting chestnuts and hot jacket potatoes.

And father home early for tea.

And so they would live

And so the earth turned

And the dark of the year was gone.


The Bridge

Author: Kay Bates

Sue Ryder Care, Leckhampton Hospice, Cheltenham

The bridge lay,

still, silent, sleeping, 

spanning the swift mountain stream

which tumbled and stumbled down the steep-sided gorge.

Through the deluge of soft summer rain it rested,

quiet,

quiescent,

oblivious to torrents above and below.

The sun pierced the gloom and ‘midst the dappled light

soft steam rose from the gap-toothed planks.

So - the challenge - to continue onward when the only foundation was aged frayed rope.

I made him go first, who’s my fountain of strength,

but he woke it from slumber, striding across.

It bounced, 

it wriggled, 

it danced with his movement

and took an age to settle again!

Slow footstep by footstep

I edged onto its flimsiness

stepping so carefully into the unknown.

It shook, 

it swayed. 

I shivered.  

But still all held fast and in my own time

I reached that far bank.

I needed a rest,  he needed a drink

so we sat together in the peace of achievement

discussing our next “expedition”.

Into our capsule of contentment intruded the sound of a distant buzz.

It grew louder, 

came closer, 

following confidently our hesitant steps down the gorge.

Suddenly he was there! 

Already halfway across that precarious structure - the postman on his moped!

No hesitation,  no waiting,  no problem:

he had mail to deliver and this was just part of his daily routine.

We two laughed.

I realised my fears were for nothing.

He waved in greeting as he passed by.

So – whatever your goal -with strength and belief, 

in fear and trepidation, 

or with confidence and familiarity

it can be achieved!


Remember Rosemary

Author: Karen Crawford

Sweet Charity Hospice Fund Spain

 

Remember now that far off day

Our lives entwined in every way.

Souls bared , secrets shared

Epistles penned to show we cared.

Many words between us flew.

And then one day with no goodbye.

Released from stress and toil and pain 

Your spirit soared.But memories remain

          


"Are You Sure?"

Author: Arthur Carr

St Luke's Hospice, Basildon

Pale with shock, my darkest hour, upon me is creeping

Deep inside of me there is a feeling

Of pain, of nagging, a volcanic effect.

The feeling is creeping to the nape of my neck.

 

My head! My head! The blood rushes so, I can only see red,

The time has come, the time that I so dread.

To postpone this time of utter disbelief, I sought

To hide, to sleep. Be anywhere but HERE, I thought.

 

The grip of fear, rooted was I, frozen with pain and shock,

Quivering, uncontollable shaking, unable to take stock.

This cannot be happening, it's a dream, when will it STOP?

Broken was my spirit, composure lost. Dead was I, a total flop.

 

My voice, at last, became free from fright,

I smashed my fist hard on the table. It felt just right.

My courage restored I faced them, angry as a bear,

Venom in my words, "Are you sure it's my turn to buy the beer....?"


but remember this

Author: Joanne Davies

Trimar

I was created perfectly

But fate turned to me

And said, “I have deceived you,

Your time is up, now see:

 

Childish dreams, fragile and weak at the seams.

Grown up plans, crazy trips to far off lands

Where I’d love to be good, but rather be bad.

What’s inside my head, is driving me mad,

Hiding swollen eyes and a wounded pride.

The best years of my life denied;

For all my wild ideas

Taunt me now. Filled with tears

The flesh is weak, the mind saddened and slow.

 

Life goes on and round we go.

Words can’t kill these things, I know,

But man can’t live on hope alone -

It can be cut, all that is grown.

 

I’ll cross the sea for a brighter world

Yet led by Angels, with life’s treasures to behold:

A daughter, a sister, a mother, a wife,

Time has slowly been twisting the knife.

 

There’s a sadness in my eyes -

No-one guessed,

no-one tried.

Some people think I’ll be far away,

Some know, I’m with them everyday.

 

But remember this…

 

I am blessed; I have loved and been loved.

Some friends have come and gone;

Ones who have lied, who said they cared

Left me hurt, left me scorned and scared

But the good ones have stayed, and played, and

Have been inspirational to this frightened little girl.

 

Bless the day you came into my life.

 

I’m looking out for Angels,

Just trying to find some peace.

Is this the right place to stay?

Please, my wings, fly me away.

 

I know Heaven sent and Heaven stole. But Angels

Lead me to some peaceful land that I cannot find inside my head;

The present like I’ve never seen it…

Is this the right place to rest, and stay?

Please let my wings fly me away.

 

Always Heaven is a place nearby.

Heaven knows I’m ready to be found,

So there’s no need to say ‘goodbye’.


Unwanted Guests

Author: Beverly Ashill

Trinity Hospice

An unwanted purple guest came to my house one night -

She has been there ever since.

How she got in I do not know,

For I was sure my doors were locked.

But there she was, inside me

Vibrant and bold and purple,

Unafraid she made me scared.

I have tried to poison her many times.

Sometimes the poison makes her sleep for a time,

But then she wakes,

Angry and vengeful,

She rapes me repeatedly

Behind closed bedroom doors.

Having no voice of her own

She steals mine, rendering me silent.

Not content with her own company,

She brought a friend -

A chunky blue snake who wrapped herself around me crushing my breath

The snake had babies: I was her womb.

They are my family now:

Should they leave one night,

Slamming the door behind them,

Would I be lost?


King of The Mermen

Author: Julia Fitzgerald

The clay is drawn into my fingertips.

Organic like the earth.

I'm six again, free to lose myself with no inhibition.

Feelings shaped through the clay.

My inner creation thus born, serene

Fishscaled, King of the Mermen.

Meditative and tranquil,

Inside and outside.


Boats

Author: Rosalyn  Newman

Lions Hospice

I like fish

I like boats

To go in the middle of the ocean

My boat is green,

I am a yellow figure.

My big friendly fish swims under me, green eyes, only fish with green eyes

I would like to live there on my boat.

Problem is, my husband don't come with me.

He doesn't like boats.


Poseidon

Author: Mavis Browne

Lions Hospice

Grey clay found under the river;

Repeated marks shaping the head;

As the river flows over the soil

The pale river reflects the colour from the sun.

Poseidon emerges from the soft earth:

Smiling kindly on the children below.


My dolphin

Author: Alison Fitzgerald

St Thomas' Hospital

My dolphin swimming in the sea,

With her rubbery warm body she makes her way to me.

I was standing all alone with the sun on my back,

With the world's weight on my shoulders;

There was no going back.

This gentle creature's softness reached out to me.

Her smiling face was comforting,

"Throw your problems in the sea," "Be free", she said,

"Go out and enjoy giving.

Have fun, make friends, have laughs.

Life is for living."


Winter's Lesson

Author: Helen Sanford

North Shore Hospice

 
Talk to me Winter, of your meaning
When the long cold night ...  day
Teach me the lessons of your nature
Tell me why leaves and people decay
 
Youve taken my bright summer colours
And now all around me is drab and grey
Once I could feel life's passion and joy
Now such pleasures go astray
 
"The lesson" says Winter, "is deep in the heart
Beneath all this pain is your treasure
A precious seed of Love has been sown
And the time has now come to nurture
 
The seed of Love is not lost to the bitter snow
Its magic can never be moved
While you remember the loves of your life
You can know your heart will be soothed
 
Now have faith in the season of Winter
And hope in the seed in your heart
Have trust in your love always forever
Love, you and your spirit can never ever part"


Ray of sunshine in a dark sky

Author: Stacy  Shelton

Indirectly linked to St Francis Hospice - SA

Three year old Thandi

Who had barely begun to live

Looked up into her mother's eyes, for what was the last time.

What were once bright brown eyes were completely lifeless

Now nothing more than a dull grey.

The only thing left a faint smile

As if recalling the few joyous memories of her short past.

Thandi, you see, had AIDS

 

As she breathed her final breath,


Faith felt the warmth against her cheek

Then the tiny lifeless body on Faith's lap

So thin and so sickly, shut her eyes and all was still.

Faith felt that icy hand of sadness and pain

Grip her heart

She had lost her baby girl

The bringer of joy and hope

The bearer of all her secrets

Her one ray of sunshine in her dark sky

She wept like she would never stop

She felt her heart would break

It was almost like someone had stabbed a sharp knife

in her heart.

 

Slowly the large hole in her heart

Started to close just a fraction

Because she new her angel had gone to be with a choir of angels

All the other AIDS babies -

A place where Thandi felt no pain

Where she could get all the puppies and kittens

 She had always wanted but could never afford.

These thoughts comforted her

And as she left the hospital

She looked into the sky

And saw a ray of sunshine pierce through the clouds

It was then she knew, her precious baby would never leave her.

She is the ray of sunshine, in a dark sky. 

 


The Olive Tree

Author: Jim  McCleod

Greenwich & Bexley Cottage Hospice

Six weeks ago I should have died

And didn't

My feet swelled up

This arm was thicker than that leg

I should've died but didn't

This week I walked across the room without a frame

I felt revitalised

Last night I lay awake, moving my fingers

And it felt good

In Greece, when the olive tree won't fruit

They wrap it in mattresses and sacking

Then bash it, knock it about generally

They stimulate a storm

The tree is revitalised

Invigorated

And fruits again


My First Day in Day Care

Author: Lesley Ankers

St Lukes Hospice, Cheshire

 

What is that loud noise ringing so near?

It's my bedside alarm sounding in my ear.

My body aches, I've a pain in my head

can't I stay here warm and snug in bed?

Not today – I cannot stay there,

it's my first day in Day Care

 

I'm filled with dread and fear.

Just after nine my transport does appear.

The driver and I enjoy a friendly chat on our ride,

through the lovely Cheshire Countryside.

I'm met by a kindly welcome,

making me feel most at home.

A comfy chair, a refreshing cup of tea,

this is a really friendly place to be.

My nurse, she comes and chats with me.

Then a bath - I'm refreshed and clean,

I really am being treated like the queen.

The doctor- she discusses my ills,

and helps me sort out all my pills.

At twelve it's off to lunch with lovely food,

then to further enhance my relaxed mood,

reflexology or reiki are offered to me.

It's watercolour class after another cup of tea.

I have not painted since the age of seven,

but I can tell this is a hobby made in heaven.

Under teachers Pat skilful eye,

I draw a landscape and paint the sky.

Next week I will paint the hills green,

such a lovely country scene.

I've had such an enjoyable day,

all my dread and fears have gone away.

I thank you all, fellow patients, staff and volunteers

for all your love – you are such dears.

There is no limit to your kindness and care,

my pain diminished while I was with you there.

I know you cannot completely take my hurt away,

but you make it easier to live from day to day.

You are such a help in these dark days

with your kind and gentle ways.

Thank you so much for this ray of light,

it really does shine so very bright.

 


help

Author: claire brown

Springhill hospice

Ankles barely moving but hearts revolving

why oh why this empty frame,

Once alive and vibrant full of life and unique longing,

Now lifeless, dead, wanting yet yearning and voiceless,

When will my identity return?


LIFE ON THE EDGE

Author: Vera Marie Mecl

 

I have lived on the edge

I have lived on the edge

I have lived on the edge

Of LIFE

and death ...

 

I have known fetid fear

and lost my senses

and known despair

 

I have heard angels sing

I have felt their caress

and the comfort they bring

when I allow

silence to enter my being

 

The heart

the centre of my vulnerability

and pain

I fear to lose my heart

to illness again

and regret the loss of wasted forces

 

I have learned to be grateful

for each and every day

I see the colours of life

RADIANTLY

 

I bask in bird song

and the joy of creation's colour

and the embracing gift of FRIENDSHIP

 

I rue for those who cannot love

I rue for those who cannot forgive

I rue for those who cannot forget

the baggage of the past

and the things that cannot last

 

I have learned that I am not the centre of LIFE

not the entire UNIVERSE

 

In my smallness I am made great

by the wholeness of the LIFE FORCE

 

I forget my fear

when I recognize that YOU are near!

 

 


Life is Important

Author: Mona  Duncan

Highland Hospice

 

Lots of things matter to me

Being amongst people that have the same as you

We can understand each other

I'm the type that likes to have lots of friends

They can take your mind off things

It helps to stop thinking about yourself

All the time

I'm still learning really, you never stop

Family are there for me.

I'm still here so it's not my time yet

I still want to enjoy it with everybody

I learnt things I never thought I would -

Painting, drawing, pottery . . .

I have watched others and seen how they cope

I've learned from them.


My Darkest Night

Author: Helen Sanford

North Shore Hospice

In the deepest sleep of my darkest night
The dream of the Golden Butterfly came to me
She showed me passages of my life, in images
First born, an egg - pearly white - perfect
 
When the time was perfect, the caterpillar emerged
Searching for sustenance, needing, urging to grow
As she grew bigger so her life grew shorter, shorter
When she could be no more, she died to the chrysalis
 
And the Dream Maker spoke her wisdom to me...
"That part of your life is gone, yes
And a new one about to begin
You must struggle in your release
And you must be on your own
As you cast off the shell of the old life
Your inner beauty as a butterfly will unfold
So as you transform, a new life will be
To be again, totally perfect and complete
And as before, your love and passion
Will radiate over others and you will give again
And you will never be forgotten, never"
 
Sunrise woke me from the sleep of my darkest night
Had I dreamed a butterfly taught me of life and death
That when I die my body will fall away as a cocoon
And my life will go on, that I will forever be...... LOVE


Memories of a 90 Year Old

Author: George  Bull

St Lukes, Basildon

When we were young the world was full of promise
Prosperity was just around the door
A golden age was on a near horizon
And peace would not be broken anymore
 
Our early years were spent in just surviving
Our parents found that jobs were hard to seek
We children didn't realise these problems
Though we had to make a penny last a week
 
Then came our eager, youthful days emerging
A time for joy, a time for sweet romance
Those happy days of cinemas and music
The hours we spent in learning how to dance
 
But soon there was another war returning
How many fruitless years, no one could tell
So many precious lives would soon be wasted
So many of our precious days as well
 
Yet once again our forces were triumphant
As survivors of the rigours of the war
We found there was a brave new world awaiting
But the world we knew was lost for evermore
 
So now we had an age of man's invention
Wonders that are common place so soon
TV, computers, transplants, double glazing
They even sent a spaceship to the moon
 
Now we have found a shining new millennium
Will the young avoid the errors of our time
What was the past will soon be forgotton
Will they enjoy a life that is sublime?
 
What does the future hold for those that follow?
Will science save them all or seal their fate?
Will they discover life is made for living?
We won't be here-we've learned it all-too late


Then you Know

Author: Beatrix Hooman

Hospice in the West

Terminal... Hysterical...

 

For an indefinate time your brain stops thinking!  Words slowly get into a numb mind, .... drowning... sinking. Into the depths of the unseeing soul. It feels like your body is turned into an iron bowl.  And that everybody could see this pain, ... this ugliness, ... the blackness.

 

Life... really stopped for a while.  And after million of tears.  You notice, life is still busy going on.

 

Suddenly you remember, small, unnoticed things that were forgotten.  When you wake up... when you see the sun... when you hear voices... when you see flowers and mountains... when you hear the birds... when you feel the wind against your skin... You remember that you are still alive.. Then you Know!

 

Even if you walk slowly... even if your body is aching with pain... even if your mirror image looks like somebody else.. even if needles and medicine take over your life... even if cake doesn't taste like cake... You remember that you are still alive.  Then you Know!

 

 Life goes on - like the sun that shines... like the laughter of a child... like a lovely song on the radio... like the moon and stars at night... like tears rolling over your cheeck... You remember that you are still alive.  Then you Know!

 

You must still live today - for your children... for family and friends... for the beauty of life... for the hope of people... for the breath still in you... You remember that God is still in charge.  Then you Know!

 


Sorry

Author: Julie Howick

Hospice in The Weald

“SORRY”


What can we do with them –
those damaged, broken bodies –
sad sorrowful souls
lamenting lives not fully lived?
Would a word have been enough
to stem the fury of a storm
of wrath and bitterness?
Just a word
to hush the growing momentum –
the persistent cries of unrelenting pain?
One small word
we refused to pass our lips –
was not whispered on our breath –
remains buried deep below a vow of care –
hidden beneath legality and fear.
With the wisdom of the years
who are the victims?
Who sheds the tears?
Is there enough power
in a word
to restore a bond of mutual trust?
Even now could honest regret
pour balm on the wounds of grief?
Of has time squandered chance?
Opportunity been lost too far?
Who can atone or reconcile?
Speak the word.
Even now it may be the means
to link our hearts and minds –
to retrieve justice, mercy and love.


Fun!

Author: Cara Smith

Richard House Hospice

A fun thing is the ball pool, 

Fun!

 

A fun thing is fun games with Josh,

Fun! Fun!

 

A fun thing is Charlie and Lola on TV

Fun!Fun!Fun!


Woof!

Author: Josh Smith

richard house hospice

My puppy is brown

And small

And very friendly

 

Woof! Woof! Woof! Woof!

Woof! Woof! Woof! Woof!

 

He's soft 

And cuddly

And has many playful puppy friends.

 

Woof! Woof! Woof! Woof!

Woof! Woof! Woof! Woof!

 

I've had him since I was two

He makes me feel happy.

And he's very, very clever - 

He can count up to eight.

 

Woof! Woof! Woof! Woof!

Woof! Woof! Woof! Woof!


Volunteer's view of Hospice Work

Author: John Byamukama

Hospice

  

THE FAMILY OF VISIBLE ANGELS

 

 Hospice team, the visible angels here on earth, that are mend broken hearts of those that have been distressed by life threatening circumstances.

 

To those who had lost hope; Hospice has brought light at the end of the tunnel, and their lives hold meaning now.

 

HIV and Cancer, the most deadly diseases, which have claimed innumerable numbers of people world wide with excruciating pains of all kinds, have now been contained by this team of angels on earth.

 

With the miraculous drugs like morphine, pain is relieved.  This proves that this team of angels have been commissioned by God, who is the author of the gift of life.

 

The slogan of "Hospice is a friend" indicates the acts of mercy and friendship fulfilling the greatest commandment of "love they neighbour as thy self".

 

The comfort fund, given to those who are completely poor, brings out the picture of a Good Samaritan to those who might have heard about that good story in the Bible. This gives good hearted ones, a motivation to donate more to this team of visible angels, so as to enable them to administer to the poor, lonely, rejected and hopeless.

 

Let those who love life to be lived more abundantly, pray for the expansion of this organization, and the springs of its resources be blessed. Let the resources flow freely to Hospice treasury for the execution of this Samaritan's work to Glorify God.

 

Regardless of religion, age, tribe, race, colour and nationality, this angelic team does not discriminate, they serve the people. It is the true spirit that should be a model to be emulated by all who are in the caring professions. It is in giving that we receive! In caring for these people there is so much the team learns from them. Many people have a belief that spending so much time with people who have life threatening illnesses, may make you become miserable and depressed. This visible Angelic team is so lively, happy and hospitable, so some patients say that the mere fact of coming to hospice relieves their pain and improves their well-being, even before they are given any drug.

You give what you have!


WHO AM I?

Author: Julie Howick

Hospice in The Weald

WHO AM I?


Am I the one who reaching out
to touch in faith –
is freed?
Or do I stretch my withered arm
to be healed of
my disease?
Am I the bent and broken one
looking only to the ground?
Seeking gentle healing hands
to make me straight and strong?
I am one who was robbed of
precious things held dear –
stripped, beaten, overcome –
abandoned, alone in fear.
Looking, longing for someone
to stop, have pity and care.
Listening to so many feet
passing closely by –
seeing faces turn away –
blind to the sight they see –
deaf to my pleading cries.

One, only, stops –
stays to see
how he might minister to me.
Kneeling in humility –
pouring grace and generosity
to relieve my grief and pain.
Who is this one befriending me?
He is my neighbour.
Love is his name.
 


The Dam

Author: Julie Howick

Hospice in The Weald

THE DAM


If the tears
gathered deep in me
should fall –
it seems a lake would overflow
into an everlasting sea –
carried to a distant shore.
But they do not flow.
Instead, as a dam
holds back the river’s rage,
they are blocked, confined –
captive in disarray –
in violent agitation –
searching, longing for release –
striving, fighting
to breach the walls of self defence –
built so high –
so carefully –
to protect this grieving heart
from those who yet
may further hurt
open wounds that will not heal.
Who can move this bastion
so strong it will not break or bend?
Who can release a cleansing stream –
living water –
to reveal a tranquil pool –
pure, calm, serene?


Untold

Author: Nina du Toit

Palliative Care Service

 

UNTOLD

 

There's a moon hanging heavy in the silent star studded sky

There's no one to share the magnificence

Of a cold African night turning dawn

The window's down and air flusters through my mind

As wheels spin across African borders

My thoughts turn to you.

 

There's a chapter unwritten in the story so far

There's a door missing and wind blows briskly into corners unsettling the dust.

There are cobwebs of memories that cling and disturb the mind

There's an opportunity for speech, which speaks only in silence

And reverberates in my head with monotonous certainty.

There are horses – black, pawing the soil, which lies untilled

There's a storm brewing and lightning on the horizon

And just here and there – the thought of you

 

You my African daughter, sister, friend & young mother in agony and despair

You my fragile and strong friend so wondrous and rare

You – a life - with nothing to compare

 

Isn't it weird?

Just when you need us certainly

Then we all disappoint you "definitely"

You who chose this African skyline and the greater world to dare………

 

There was the spark of your life, your touch on our world

and a story untold

 

NOW

Hands no longer reach out in greeting

Arms no longer hug

Eyes convey no meaning

 

There's a silhouette against the African dawn horizon

And I mourn enraged the tragedy of you,

who offered me African daughter, sister, friend in faith and trust and hope unashamed        

  

 

The rage boils inside

The mourning spills over

The loss of that spirit called Fiona Nxonga

The African girl, sister, woman, mother. Queen

 

Her only "sin" was living and loving and hoping in Africa.

 

She lived with her boyfriend "Gift" next door and managed the house and tried to "manage" her life.

She ran to my friendship as a fellow countrywoman

To the arms of someone who could at least initially on some geographical level relate…..

 

Relate to her story – of the pursuit of a better life

For herself and her loved ones who were back home living in impoverishment

In Zimbabwe.

 

We greeted in Shona and shared the beauty and grace of the country of both our births.

She invited my daughters to swim off the heat of summer in the pool of the house next door.

She entertained with stories she carried in her heart and soul of her childhood and the flavours of an African Life & a Western cocktail.

 

She ran to assist me – when my sister and husband failed to understand my thinking  - my allegiances – my passion and compassion for all people.

 

She arranged bakkies and helped pack and clean the "rented" house till late and saw me steal away from the "home" my sister and her husband so conditionally afforded me - to another home.

 

She visited and shared her achievements

She was A Queen of Africa

Regal and Proud in her bearing

A dresser of fashion of note.

Hopeful in her outlook

Tearful in her longing for those at "home" to know that she "was"

She could travel without passport / ID across African borders

She could cross rivers in dangerous wild territory

She could smuggle enclosed in "taxis" "trucks"

To live, and improve her life in Africa.

 

She lived and loved in Africa.

 

She arrived on the doorstep of my new home

After some long time

The baby was almost due

She had no where to go.

 

She coughed and spluttered and was thin

She answered  "Yes"

When I asked if she had been to the clinic.

She answered "Yes"

When I asked if she had taken a TB test.

My heart was heavy with fear of the next question I would need to ask.

She answered "No"

When I asked if the test was positive.

My next question lay hanging in faith that it need not be asked.

 

She carried handbags full of tablets

All in yellow packets

She could not tell you why she drank any of them.

She could not tell you why she knew every hospital and clinic in Johannesburg

She could not tell you why she coughed up blood

Or why she went regularly to sit in long queues

For more tablets to line her handbags.

 

She chose her outfits with care.

She never appeared in the streets as the "Losing & Lost Daughter of Africa" 

The "professionals" in government clinics and hospitals  resented her looking so "good" on the exterior of things

They resented her "White" Aunty who was taking care of her and her unborn child, who drove at five in the morning to drop her off for "help" and picked her up from clinics and hospitals for check up, whenever possible

(She was full nine months pregnant – women in Africa are jealous of this coddling and tender loving care.) .

They resented her optimism that all would indeed be great & good because she was loved by a grandmother in rural Zimbawe, by me and by her friends.

They resented her speaking of her love and friendship for the "white man" she discretely never openly named.

They resented her crossing borders in pursuit of a better life.

They resented her for the African man who made her pregnant

To prove that she was fit for child bearing.

They resented that they too, would and could do, what she had done. 

They resented that she too, was a glorious, confused-clairvoyant

Queen, daughter, sister, mother-to-be, friend

Living and Loving in Africa.

 

Her evenings were filled most often entertaining

My three daughters, my German daughter and Anna

(who was HIV positive and had eight children of her own)

She told the stories and tales of her life, her childhood, her travels across borders, her loves, her life.

Anna and girls and I coached her and supported her to the point where a daughter may be born to this Queen.

 

She was delivered to Coronation Hospital

She delivered her daughter Mpho late afternoon

She was returned to the pavement to wait for me to pick her up early the following morning.

She breast fed her daughter (no money in the house for formula)

and struggled with hidden stitches in tears.

She had no guidance on how to care for herself or her child.

She had not been given any surgical spirits and I only discovered the lack of guidance when the umbilical cord was turning septic.

 

We laughed – we cried – we loved her and Mpho.

Anna carried Mpho on her back and we all coaxed and loved Fiona

We rocked them in the sunlight which streamed through the diningroom window.

 

Fiona was thin and proud

She was proud and hopeful

She carried Mpho for visits on public transport to clinics

She dressed her baby "Queen" in glory.

She adored her and loved her and struggled as young mothers do.

 

She coughed and spluttered

She lined her handbag with pills and disinformation.

It would seem no-one could explain

"the matter with Fiona"

 

Anna – discovered the stash of yellow tablets in brown paper bags during one of her spring cleaning sprees.

The house was full to capacity

Danie / Lelanie had joined our family as they looked for themselves.

Two bi-polar friends caused chaos

Trying to find understanding.

 

I was dismayed

I was astounded at the discovery

Of tablets untaken

I was outraged

At explanations not provided

Insights not afforded or gained

At "Patient Rights" violated.

 

 

 

 

I was Aunty

To take care

To probe

To question

To trust

 

She left to show off her daughter

To the father

Who had taken another.

He would buy blankets and booties

And maybe a pram

To push the baby Queen

In regal transport down the streets of the upmarket suburb.

 

She did not return

Taxis delayed transport we all thought.

Staying over with "sisters" to share the joy.

 

She was returned

Baby wrapped and in clean nappy.

Dumped at the gate.

Slung out of a passing car

Like a bag of bad news.

 

The girls phoned Mom

Fiona's back

She's bad Mom

Please come home quick

 

"Call the ambulance"

"I'll be there now – but I am far away"

"Is Mpho all right?"

"Yes – she looks fine"

"Keep her at home"

"Send Fiona with the ambulance"

 

So  - off to home.

Ambulance took her to Helen Joseph

She was abducted and raped

A set up, by a jealous girlfriend, of the father of Mpho.

 

 

At Helen Joseph

Thank God – found Fiona

Waiting to attention – five hours

Only then discover

Insensitive doctor

Wrong hospital

Woman's issue

To be dealt with by Coronation for women.

Long wait 

Back in Ambulance

Off to Coronation.

 

What about Mpho?

There's no milk at home.

It's after hours – no shops open.

Ask for milk.  Not possible. Dispensary closed..

Return home – tell Anna – take care Mpho and all the girls crying.

 

Back to Coronation.

Find Fiona

Sitting in a ward – waiting in government issue open backed issue..

Nurses can't let her rest in the open bed.

Fight with them – what is the delay.

"She is not bleeding so badly – file missing on lower floor.

In any case who are you to her?

Why are you "Involved"? "

God !!!!!!!!!!!

 

Thank God – doctor pauses on round to listen and intervene and ensure a bed in the chaos of pain.

 

"Can Mpho join her mother?

No

What can we do – there is no milk to feed the child ???

Shops are closed?"

No response – no help – no support.

God!!!!!!!!!!!!!

 

Petrol – borderline – no money coming in.

 

Disaster looming on all fronts.

 

Faith – hold on.

Days pass

Fiona's home – life moves on.

Scared to walk alone.

Scared to go out.

Scared Queen to live.

 

 

Conquer fear – get out there – live life African Queen.

 

Press – dress – perform

Hold head high

Hold child close to heart

Be the African Queen you are.

Trust – faith – belief.

 

So on you go.

So on we went.

 

Again upheaval and removal

Home lost to the turn of tides.

Accusations and misunderstanding

You cannot even take care of yourself and kids!!

And these people!!!!!!!!??????

Separations and partings

 

So on you go

So on we went

All our separate ways.

 

Time to time

Visit – call

How you Fiona & Mpho?

Still coughing and spluttering.

Are you going to the clinic?

Yes.

Take the medicine – take care – we love you.

How you Aunty Nina and girls and Alex and Paul and Brad and all?

All fine.

 

Phone call – Aunty Nina – they say I have TB.

Well Fiona – at last you know.

Are you going to the clinic regularly?

Are you taking medicines?

Are you taking care?

What about Mpho?

 

Yes – thank you – Yes

 

Visit in March / April 2005 just after phonecall

 

Fiona & Mpho and sisters and daughter and friend in tow.

Looking weak and thinner

Eyes huge and soulful and sad.

Great to see you (My heart bleeds)

So kind of you to bring her

You're a man of words and DEEDS.

 

Aunty Nina I'm HIV positive.

There's hope you know – we won't leave you – we won't let you go.

Not without a fight

We'll do all in our might.

There's anti retrovirals

People recover and live you know.

We love you – you know – don't give up hope – don't let go.

 

I want to go home to see my grandmother in Zimbabwe

I miss her so.

There's no food even there.

She's old and can't care

For you or Mpho.

You stand a better chance here.

 

Get on a programme

Get well and then go to greet her and love her and be with her in Africa.

 

Hope – smiles – faith – tears.

 

So on you go

So on we went

 

 Find out about programme for Antiretrovirals

Then Fiona's in clinic – CD4 count very low.

Next slapped into hospital. Transferred to another and then again without any notice to anyone else .

So far – so distant – so removed!!!!

Treatment for TB.

What about the HIV/ AIDS?

Her CD4 counts low you know.

Nothing in her file- can't trace any record of HIV/ AIDS

Confidential you know

Can't treat without voluntary disclosure.

Even then – don't have the resources / facilities for Anti Retrovirals in any case.

How's this when there is such a strong link between TB and HIV????

 

Just the way things are you know!!!!

 

Do you counsel her?

Do you talk to her – do you try to help her???????

God??????

 

Yes well – we try you know.

 

Visit her – little slip of a soul – with great big eyes.

Is that you – can't get off the bed to wash.

We brought you love and biscuits and cream and soap and a face cloth.

To make you feel better.

We love you – get better.

Let me wash your face and hands.

Don't use the water from the basin tap – another unvisited patient screams.

So sorry – just trying to care for one.

Ask ward nurses for the way to the bathroom.

Weird request – what you want to do there?

Just help her to bath – give her some care.

Make her feel better – try to do something / anything

Powerless / defenceless - 

patient and family / friend / sister / mother / carer you know.

Bathe her & talk to her & show her in the mirror how beautiful she is.

Show her that she should live – fight to live.

Remember your stories – remember your life.

Gonna bring you a tape as soon as you're better.

Tell your story – tell the world about your life.

You're such a great story teller.

You relate with such passion and joy.

You'll tell the story and live to love and nurture and tell the story to Mpho.

Hope – please cause that's all we can offer NOW

Hang in there – we'll get there – soon we hope.

Leave her in thanks to nurses , in faith and prayer.

 

Where to now?

We talk and network and try to bend powers that be.

It has to be recorded in her file or no action can be taken.

Track the file/s and tests from the clinics just before the hospitalization>>>>

Mission impossible. Not a doctor >>> Not a relative>>>

Confidentiality and disclosure you know.

 

Her honourable, true and stand by friend

Desperate

Try bribing and coercion

Get the matron on your side.

Please help us save her

Send her for the CD4 count.

Fruit and biscuits and flowers.

Yes  - O K

Please write it in the file!! Please so that it is REAL.

Please set a date.

Set for 5th July 2005

CD4 Test a nearby clinic

Then refer with date to Helen Joseph.

 

Relief – joy – maybe something will now be done.

Just wait Fiona – we're working on it

Just hang on – we'll get there with you by our side.

Hope, faith, joy, tears.

 

Date is set.

Getting on with life.

Because we must go on.

Calls - Remember to push the system.

Call the matron

Has Fiona been sent for CD4 test.

Matron's not available on 4th July.

On a training course for two days.

No one ever told us – the nurses.

She has thrush and tests for CD4 cannot be done reliably.

(What are we to know – is this true – or just delay)

No time to call – working at life and living and getting by.

Worry and wait – try pushing again on Monday 11th .

Hectic Monday – don't get around to pushing.

 

Work on Tuesday  12th

Get through lot of lots to be done.

Take a break in your mind.

Think of Fiona.

Call for matron.

Not available

Leave message

Call later again

Must push……….. must push ,,,,, get Fiona there.

Not available again

Put me through to ward

At least find out how she is

At least let her know we're gonna get her there.

 

Hello – What – Oh - Of Fiona Nxongo – that one. ……… !!!!!

Very bad news

What – don't tell me

Very bad – she passed away on Saturday 9th July 2005.

We called Yoeville police station to inform family & friends.

God – our numbers were in her file!!!!!!!!!!

Her story  is over

It, like so many millions of others, won't get told.

 

Her only sin was that she lived and loved and hoped in Africa.

 

Your daughter lives on.

Another orphan in Africa

Her Queen and mother

Has passed beyond her reach and understanding

May she know one day your life and love and hope and story in Africa

May she know how you danced and laughed with joy and glee.

How she loved LIFE and her daughter

May she live to the Glory that she your daughter with HIV / AIDS is and

Love and Hope and rewrite the story of

A Queen, a daughter, a sister, a mother, a friend, a woman in Africa. 

 

Fiona  Nxongo of rural village in Zimbabwe

Your story lives

It shames all the systems

All the officials

All the governments

The local and global powers that be

who don't care

That you lived and loved an African Queen in Africa. 

 

And now

So on you go – crossing spiritual boundaries in Africa

So on we went crossing purposes in Africa.

So we all go on………..

 

I ran from work – on hearing the news.

Note I will be back – have to get it all out.

Will be back tomorrow when it's all out.

But it is never going to be all over and out.

 

We love you and mourn you – Nina, Jeudis, Nicolle, Zantelle, Alexandra from Germany, Paul, Anna, Brad  and many many more.  12 July 2005


for sameer

Author: Patricia Luck

Hospice Witwatersrand

 

Too young to die

Too old to hide

Just time to me

And learn how to fly


Dissertation on a delightfully delicious dessert designed just for me

Author: Kay Bates

Sue Ryder Care, Leckhampton Hospice

Wow!!!!


My Friend

Author: Joan  Summers

I have a sister-in-law dear to me,

She has taught me a lot about the big"C" 

 

Positive of thought and steely of will,

Watercolours, silk painting - all done with GREAT  skill.

 

These are talents she knew not she had,

So many good things have come from the bad 

 

We talk on the phone for an hour at a time,

She tells me her news and I tell her mine.

 

She tells me she still has a lot of "damage" to do

and knowing my Mona, I'm sure this is true.

 

So many milestones, for herself,  she has set,

So far,  one by one,  all have been met. 

 

She says "She has a lot of diel in her yet"

So please, dear Lord, give her the TIME. 

 

 

 

 


The Spider Inside

Author: Dorothy Trewartha

Trimar

The Spider Inside

By Dorothy Trewartha

 

She’s lurked in my body

For too many years

Growing bigger and scarier

Just like my fears

 

She sits in a corner

And sends out her thread

To my back, to my lung,

To my liver, (my head?)

 

“Why should it be me?”

Why not?” she replies,

“Someone else didn’t get it

and everyone dies.”

 

“You have many blessings

and faced up to your fear

I’m a very slow grower

which is why you’re still here.”


Why?

Author: Valerie Fraser

Highland Hospice

 

We were a family of five

Mum, Dad and two brothers

Disaster struck, why?

Loving father taken, why?

Six months? a year? no six weeks

Why? Why?

 

Years have past by,

Yes, Daddy's pride and joy

Why!

Yes! all clear, no more.

No, not again, why?

Chemo, pain, sleepless nights

Why? what have I done?

 

Yes, all clear again -

But no, still pain.

Why, why pain?

OH no again, it's back

It escaped, the little bug(ger).

No chemo, but radio this time.

 

But it's not only Daddy's pride and joy

But many more loved ones over the world

All asking the big question -

WHY!!

 


Wings, my angel...

Author: Ângela Simőes

 I wish I had wings to fly with you

But wings is the one thing I don´t have

I wish I had wings to grow

But if I ever get my wings, I still don´t know

I wish I had wings to live

But without wings I continued forward

I wish I had wings to know you

But I knew you even witheout my wings

I wish I had wings...I wish I don´t miss you so much

I wish you don´t flayed away so soon

I wish I have you still with me

Although I keep growing, living, smiling

And wishing that some day I have my wings

To fly right back to you!

My grandfather was diagnosted with cancer in January 1993. He died in December of that same year. He is my angel...forever.


Thoughts of a Hospice patient

Author: Harriet  McCaul

Lindsey Lodge Hospice in Scunthorpe, DN17 2AA

The founders should be proud indeed

this Hospice cares for those in need.

Our thanks to those who volunteer

their time and cars to bring us here. 

 

When welcomed with a cheerful smile

most folks are glad to stay awhile

And other people pleased to meet

once settled in a comfy seat.

 

The staff and helpers then proceed

to try and tend each patients' need.

They may a nurse or doctor be-

or someone who makes cups of tea. 

 

A midday meal the cooks prepare

and we have several choices there

of food, well cooked and served aright,

in dining room that's clean and bright.

 

Some people find they still have skills

to make nice things despite their ills.

A craft instructor shows the way

to fill spare time throughout the day. 

 

The drivers come back after three

when we have had some cake and tea.

So "thanks for all your care" we say

before we go our homeward way. 

 

If you are living all alone

and cannot go out on your own

to mix with others is a pleasure

each visit then is time to treasure.

 

A bedded unit now is here

for those whose ills are more severe

or need to have some respite care

so carers can some free time share. 

 

Supporters of the hospice know

from little acorns oak trees grow.

So grateful thanks we give to all

for contributions – great and small

 


what is a hug

Author: jan McClaren

the rowans hospice

 

     

The world has changed in many ways

Some obvious to see

But other changes have happened too

Some quite subtly.

 

Thankfully the days are past

When a stiff upper lip was expected

But now emotions can be shown

Without fear of being rejected

 

Think of when a baby is born

The first thing it gets is a cuddle

Why does that gesture get lost?

Why is life a struggle?

 

There isn’t a person who has a life

That’s  free of stresses and strain

Everyone has their problems

And no-one can stop that pain

 

Simple things can make a difference

Perhaps a hug is all it would take

It’s easy to give and free to do

But what a change it could make

 

Because a hug can say you’re happy

It can even say you’re sad

A hug can even prompt a tear

To relieve when times are bad

 

A hug can say you’re sorry

A hug can show you care

A hug can say you’re not on your own

Or many thanks for being there.

 

So no matter what ups and downs in life

Happen to come your way

Be sure that if you’re given a hug

Remember it through the day

 

Because a hug can mean so many things